{"id":3490,"date":"2020-09-10T19:32:28","date_gmt":"2020-09-10T19:32:28","guid":{"rendered":"http:\/\/alianzapacientes.org\/?p=3490"},"modified":"2020-09-10T19:32:28","modified_gmt":"2020-09-10T19:32:28","slug":"dia-internacional-de-la-fiebre-mediterranea-familiar","status":"publish","type":"post","link":"https:\/\/www.marianakirby.com\/alapa\/2020\/09\/10\/dia-internacional-de-la-fiebre-mediterranea-familiar\/","title":{"rendered":"D\u00eda Internacional de la Fiebre Mediterr\u00e1nea Familiar"},"content":{"rendered":"

El jueves 17 septiembre<\/strong> a las 16.00 horas<\/strong> (de la Argentina), se llevar\u00e1 a cabo una jornada a trav\u00e9s de Zoom por el D\u00eda Internacional de la Fiebre Mediterr\u00e1nea Familiar<\/strong>, una enfermedad poco frecuente.<\/p>\n

Desde la Asociaci\u00f3n Fiebre Mediterr\u00e1nea Familiar de Argentina <\/a><\/strong>anunciaron que a lo largo de dos horas, diferentes especialistas compartir\u00e1n informaci\u00f3n sobre este s\u00edndrome autoinflamatorio que se caracteriza por episodios recurrentes y cortos de fiebre y serositis que producen dolor en el abdomen, el pecho, las articulaciones y los m\u00fasculos.<\/p>\n

Se podr\u00e1 acceder a la jornada a trav\u00e9s del siguiente link: https:\/\/bit.ly\/31Ka33z<\/a> o con el ID 815 4717 1937 <\/strong>(C\u00f3digo de acceso: 515051<\/strong>).<\/p>\n

 <\/p>\n

\"Invitaci\u00f3n
Invitaci\u00f3n a la actividad por el D\u00eda Mundial de la Fiebre Mediterr\u00e1nea Familiar<\/figcaption><\/figure>\n

 <\/p>\n

Compartimos el programa de la actividad<\/strong><\/span><\/h3>\n

Presentaci\u00f3n Madrina y Padrinos<\/strong><\/h4>\n

Madrina: Mariana Arias (Periodista – Actriz – Conductora de Radio y Tv)<\/p>\n

Padrino: Dr. Mario Bruno (Reconocido Onc\u00f3logo Argentino – Fundador y Miembro de la Sociedad Argentina de Periodismo M\u00e9dico).<\/p>\n

Padrino solidario: Dr. El\u00edas Hurtado Hoyo (Pdte. de Honor de la Asociaci\u00f3n M\u00e9dica Argentina – Miembro de la Academia Francesa de Medicina – Pdte. del Centenario del Rotary Club de Bs As. y del Rotarismo Argentino).<\/p>\n

 <\/p>\n

\"Listado
Listado de disertantes<\/figcaption><\/figure>\n

 <\/p>\n

Disertantes:<\/strong><\/h4>\n

Dr. Antonio Catal\u00e1n Pellet<\/strong><\/span><\/p>\n

Reumat\u00f3logo – Especialista en Medicina Legal – Consultor del Serv. de Reumatolog\u00eda del Htal. Bernardino Rivadavia \/ Argentina.<\/p>\n

Tema: FMF en adultos.<\/p>\n

 <\/p>\n

Dr. Rub\u00e9n Cuttica<\/strong><\/span><\/p>\n

Reumat\u00f3logo Pedi\u00e1trico – Consultor del Htal. de Ni\u00f1os P. Elizalde y Htal. Brit\u00e1nico de Bs. As. – Director de la Carrera de Reumatolog\u00eda Pedi\u00e1trica de la UBA\/Argentina.<\/p>\n

Tema: FMF en ni\u00f1os.<\/p>\n

 <\/p>\n

Dr. C\u00e9sar Crespi<\/strong><\/span><\/p>\n

M\u00e9dico Especialista en Cl\u00ednica M\u00e9dica y Hepatolog\u00eda – Ref. del Programa del Ministerio de Salud de la Pcia. de Bs. As. – Coord. en Enfermedades Raras de dificultoso Diagn\u00f3stico del Htal. San Juan de Dios de la Plata \/ Argentina.<\/p>\n

Tema: Creaci\u00f3n de Centros de Referencia para la detecci\u00f3n de las EPOF.<\/p>\n

 <\/p>\n

Mar\u00eda Teresa Manzolido<\/strong><\/span><\/p>\n

Farmac\u00e9utica y Magister en Farmacopol\u00edticas \/ Argentina.<\/p>\n

Tema: FMF Rol del Farmac\u00e9utico.<\/p>\n

 <\/p>\n

Jos\u00e9 Magari\u00f1os<\/strong><\/span><\/p>\n

Bioqu\u00edmico Especialista en Inmunohematolog\u00eda, Hemoterapia y Banco de sangre \/ Argentina.<\/p>\n

Tema: FMF Detecci\u00f3n de Amiloidosis en sangre.<\/p>\n

 <\/p>\n

Florencia Braga Men\u00e9ndez<\/strong><\/span><\/p>\n

Directora General de Proyectos para ALAPA – Alianza Argentina de Pacientes \/ Argentina.<\/p>\n

Tema: Que son las EPOF.<\/p>\n

 <\/p>\n

Mar\u00eda Julia Zunino<\/strong><\/span><\/p>\n

Dra. Adscrita de Oftalmolog\u00eda de la UBA – Directora M\u00e9dica de la Comisi\u00f3n de prevenci\u00f3n de infecciones del Consejo Argentino de Oftalmolog\u00eda \/ Argentina.<\/p>\n

Tema: FMF Complicaciones Oftalmol\u00f3gicas.<\/p>\n

 <\/p>\n

Dr. Roberto Glorio<\/strong><\/span><\/p>\n

Dermat\u00f3logo Profesor Regular Adjunto de la UBA \/ Argentina.<\/p>\n

Tema: FMF y sus consecuencias en la piel.<\/p>\n

 <\/p>\n

Malena Vetterli<\/strong><\/span><\/p>\n

Paciente \u2013 Pdte. Fundadora y Directora Ejecutiva de FMF & AID Global Association, Federaci\u00f3n Internacional de Autoinflamatorias \/ Zurich – Suiza.<\/p>\n

Tema: Funcionamiento de la Federaci\u00f3n.<\/p>\n

 <\/p>\n

Prof. Karina Uranga<\/strong><\/span><\/p>\n

Cosmiatra especialista en Drenaje linf\u00e1tico \/ Argentina.<\/p>\n

Tema: Detecci\u00f3n de pacientes con inflamaciones severas.<\/p>\n

 <\/p>\n

Dra. \u00c1ngela G\u00f3mez<\/strong><\/span><\/p>\n

Profesora dedicada al Diagn\u00f3stico Prenatal\/ Argentina.<\/p>\n

Tema: FMF y Embarazo.<\/p>\n

 <\/p>\n

Luciana Escati<\/strong><\/span><\/p>\n

Directora Ejecutiva de FADEPOF.<\/p>\n

Tema: Avances en el posicionamiento de las EPOF \/ Argentina.<\/p>\n

 <\/p>\n

Sandra Pel\u00e1ez<\/strong><\/span><\/p>\n

Especialista en Psicolog\u00eda del Ejercicio y la Salud del Htal. Sainte- Justine de Montreal y Universidad de Montreal \/ Canad\u00e1.<\/p>\n

Tema: Los retos de la autogesti\u00f3n guiada de la salud en enfermedades raras.<\/p>\n

 <\/p>\n

Dr. Marcelo Andrade<\/strong><\/span><\/p>\n

Pediatra – Consultor de Consultorios Externos del Htal. Sant Joan de Barcelona – Investigador responsable del Registro Internacional de pacientes con enfermedades raras afectados con COVID 19 \/ Espa\u00f1a.<\/p>\n

Tema: Registro Internacional de Pacientes con Enfermedades Raras con COVID 19.<\/p>\n

 <\/p>\n

Dr. Ernesto Bersusky<\/strong><\/span><\/p>\n

Traumat\u00f3logo – M\u00e9dico Consultor del Htal. de Pediatr\u00eda Juan P. Garrahan CABA \/Argentina.<\/p>\n

Tema: FMF Complicaciones esquel\u00e9ticas.<\/p>\n

 <\/p>\n

Lic. Gast\u00f3n Colodro<\/strong><\/span><\/p>\n

Psic\u00f3logo y Psicoanalista \/ Argentina.<\/p>\n

Tema: FMF Desde la mirada de la Psicolog\u00eda.<\/p>\n","protected":false},"excerpt":{"rendered":"

El jueves 17 septiembre a las 16.00 horas (de la Argentina), se llevar\u00e1 a cabo una jornada a trav\u00e9s de Zoom por el D\u00eda Internacional de la Fiebre Mediterr\u00e1nea Familiar, una enfermedad poco frecuente. Desde la Asociaci\u00f3n Fiebre Mediterr\u00e1nea Familiar de Argentina anunciaron que a lo largo de dos horas, diferentes especialistas compartir\u00e1n informaci\u00f3n sobre […]<\/p>\n","protected":false},"author":1,"featured_media":3493,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_joinchat":[],"footnotes":""},"categories":[7],"tags":[],"class_list":["post-3490","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-enfermedades-poco-frecuentes"],"yoast_head":"\nD\u00eda Internacional de la Fiebre Mediterr\u00e1nea Familiar - Alianza Argentina de Pacientes - ALAPA<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.marianakirby.com\/alapa\/2020\/09\/10\/dia-internacional-de-la-fiebre-mediterranea-familiar\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"D\u00eda Internacional de la Fiebre Mediterr\u00e1nea Familiar - Alianza Argentina de Pacientes - ALAPA\" \/>\n<meta property=\"og:description\" content=\"El jueves 17 septiembre a las 16.00 horas (de la Argentina), se llevar\u00e1 a cabo una jornada a trav\u00e9s de Zoom por el D\u00eda Internacional de la Fiebre Mediterr\u00e1nea Familiar, una enfermedad poco frecuente. 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