{"id":5327,"date":"2024-08-02T10:28:56","date_gmt":"2024-08-02T10:28:56","guid":{"rendered":"https:\/\/alianzapacientes.org\/?p=5327"},"modified":"2024-08-02T10:28:56","modified_gmt":"2024-08-02T10:28:56","slug":"conociendo-las-epof-en-el-calafate","status":"publish","type":"post","link":"https:\/\/www.marianakirby.com\/alapa\/2024\/08\/02\/conociendo-las-epof-en-el-calafate\/","title":{"rendered":"Conociendo las EPOF en El Calafate"},"content":{"rendered":"<p>A mediados de agosto la <strong>Alianza Argentina de Pacientes \u2013 ALAPA<\/strong> llegar\u00e1 con el ciclo <strong>Conociendo las EPOF por la Argentina<\/strong> a la ciudad de <strong>El Calafate<\/strong> en <strong>Santa Cruz<\/strong>.<\/p>\n<p>&nbsp;<\/p>\n<p>Entre los d\u00edas <strong>15 y 17 de agosto<\/strong> participaremos en charlas y se realizar\u00e1n visitas a pacientes e instituciones.<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<h3><span style=\"color: #800080;\"><strong>2\u00b0 Jornada Hospitalaria sobre EPOF<\/strong><\/span><\/h3>\n<p>El <strong>jueves 15 de agosto<\/strong>, de <strong>8.00 a 18.00 horas<\/strong>, el Hospital SAMIC de El Calafate junto a la Unidad Hospitalaria de EPOF y el Grupo EPOF Patagonia organizar\u00e1n este encuentro en el Sal\u00f3n Auditorio del Hospital SAMIC.<\/p>\n<p>&nbsp;<\/p>\n<p>Compartimos el <strong>programa<\/strong> de la jornada:<\/p>\n<ul>\n<li><strong>00 a 8.30 hs<\/strong>: acreditaci\u00f3n<\/li>\n<li><strong>30 a 9.00<\/strong>: discurso de apertura de autoridades del Hospital SAMIC<\/li>\n<li><strong>00 a 9.30 hs<\/strong>: presentaci\u00f3n de la Unidad Hospitalaria de EPOF<\/li>\n<li><strong>30 a 10.20 hs<\/strong>: Gen\u00f3mica aplicada a la cl\u00ednica. Red Federal de Gen\u00f3mica y Bioinform\u00e1tica, por el Dr. Juli\u00e1n S\u00e1nchez Loria.<\/li>\n<li><strong>20 a 10.40 hs<\/strong>: coffee break<\/li>\n<li><strong>40 a 11.20 hs<\/strong>: Enfermedades cardiovasculares hereditarias y muerte s\u00fabita, por el Dr. Luis Enrique G\u00f3mez.<\/li>\n<li><strong>20 a 12.00 hs<\/strong>: Diagn\u00f3stico molecular y relaci\u00f3n genotipo \u2013 fenotipo en hemofilia, por la Dra. Liliana Rossetti<\/li>\n<li><strong>00 a 13.30 hs<\/strong>: almuerzo<\/li>\n<li><strong>30 a 15.30 hs<\/strong>: presentaci\u00f3n de casos cl\u00ednicos<\/li>\n<li><strong>30 a 16.00 hs<\/strong>: coffee break<\/li>\n<li><strong>00 a 18.00 hs<\/strong>: conversatorio con la comunidad con Florencia Braga Men\u00e9ndez y Carolina Oliveto (ALAPA), Florencia Ag\u00fcero (EPOF Patagonia) y Antonella Rossi (Fundaci\u00f3n de la Hemofilia)<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<figure id=\"attachment_5328\" aria-describedby=\"caption-attachment-5328\" style=\"width: 240px\" class=\"wp-caption aligncenter\"><img fetchpriority=\"high\" decoding=\"async\" class=\"size-medium wp-image-5328\" src=\"https:\/\/www.marianakirby.com\/alapa\/wp-content\/uploads\/2024\/08\/WhatsApp-Image-2024-07-26-at-14.52.08-240x300.jpeg\" alt=\"\" width=\"240\" height=\"300\" srcset=\"https:\/\/www.marianakirby.com\/alapa\/wp-content\/uploads\/2024\/08\/WhatsApp-Image-2024-07-26-at-14.52.08-240x300.jpeg 240w, https:\/\/www.marianakirby.com\/alapa\/wp-content\/uploads\/2024\/08\/WhatsApp-Image-2024-07-26-at-14.52.08-819x1024.jpeg 819w, https:\/\/www.marianakirby.com\/alapa\/wp-content\/uploads\/2024\/08\/WhatsApp-Image-2024-07-26-at-14.52.08-768x960.jpeg 768w, https:\/\/www.marianakirby.com\/alapa\/wp-content\/uploads\/2024\/08\/WhatsApp-Image-2024-07-26-at-14.52.08.jpeg 1024w\" sizes=\"(max-width: 240px) 100vw, 240px\" \/><figcaption id=\"caption-attachment-5328\" class=\"wp-caption-text\">2\u00b0 Jornada Hospitalaria sobre EPOF<\/figcaption><\/figure>\n<p>&nbsp;<\/p>\n<h3><span style=\"color: #800080;\"><strong>Conociendo las EPOF por la Argentina<\/strong><\/span><\/h3>\n<p>Con este ciclo hemos visitado la ciudad de Navarro (provincia de Buenos Aires), Santa Fe capital y Rosario (Santa Fe), Presidente Roque S\u00e1enz Pe\u00f1a, Las Bre\u00f1as y Hermoso Campo (Chaco), y San Juan capital.<\/p>\n<p>Previo al viaje a El Calafate, ALAPA estar\u00e1 participando en actividades en C\u00f3rdoba capital.<\/p>\n<p>&nbsp;<\/p>\n<h4><strong><span style=\"color: #800080;\">ALAPA en San Juan<\/span><\/strong><\/h4>\n<p><iframe title=\"ALAPA en San Juan\" width=\"800\" height=\"450\" src=\"https:\/\/www.youtube.com\/embed\/P86Ir3ApvpE?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>&nbsp;<\/p>\n<h4><span style=\"color: #800080;\"><strong>ALAPA en Santa Fe<\/strong><\/span><\/h4>\n<p><iframe title=\"Conociendo las EPOF Santa Fe\" width=\"800\" height=\"450\" src=\"https:\/\/www.youtube.com\/embed\/GIMFS7K8hgo?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>&nbsp;<\/p>\n<h4><span style=\"color: #800080;\"><strong>ALAPA en Chaco<\/strong><\/span><\/h4>\n<p><iframe title=\"Conociendo las EPOF en Chaco\" width=\"800\" height=\"450\" src=\"https:\/\/www.youtube.com\/embed\/zxstAcnpSdI?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n","protected":false},"excerpt":{"rendered":"<p>A mediados de agosto la Alianza Argentina de Pacientes \u2013 ALAPA llegar\u00e1 con el ciclo Conociendo las EPOF por la Argentina a la ciudad de El Calafate en Santa Cruz. &nbsp; Entre los d\u00edas 15 y 17 de agosto participaremos en charlas y se realizar\u00e1n visitas a pacientes e instituciones. &nbsp; &nbsp; 2\u00b0 Jornada Hospitalaria [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":5329,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_joinchat":[],"footnotes":""},"categories":[7,8],"tags":[],"class_list":["post-5327","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-enfermedades-poco-frecuentes","category-salud"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.8 - 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